Mr. Snow, CEO of Flames is grateful for sharing the story of the ALS battle at the NHL Awards

Amyotrophic lateral sclerosis affected his face, speech, and right arm, but he was here with his wife Kelsey and their children — Cohen, 10, and Willa, 7 — to present the Norris Cup and raise awareness of progressive neuromuscular disease.

Snow hit his chest with his left arm in appreciation.

“AML is an isolated disease,” Kelsey told the audience. Thanks for always reminding us that we are not alone.

“Now we have handed the trophy to the best defender,” Chris said. “I know these people are very important. When creating the roster, they are the foundation of the team.”

“These are the favorites for the James Norris Memorial Cup,” Kelsey said.

VIDEO: Chris Snow and his family speak at the NHL Awards

After montage a video for roman jose From the Nashville Predators, Victor Hedman From Tampa Bay lightning and Cal Makar In the Colorado Avalanche, they opened a box containing the name of the winner.

“And the Norris Cup goes to…” Chris said.

“Cal Makar!” Cohen said.

Each presenter was a Tuesday special.

There was Thomas Hodges, who overcame blindness in one eye to play in a game for the Anaheim Ducks this season as an emergency backup goalkeeper.

There was Jake Thibault, the Milton (Mass.) Academy player who was paralyzed by an injury in September 2021.

There was Nadia Popovici, a Seattle Kraken fan, who spotted a cancerous mole on the neck of Vancouver Assistant Equipment Manager Canucks Red Hamilton from behind the glass.

Then there were the snoozes, who represented more than themselves.

“It’s a great honor,” Chris said. “Tonight is all about the players and their achievements, and not just letting us get involved but sharing our story is a great way to honor the people who have the disease, not just us. Hey, this disease deserves more attention. That, and we are really grateful to the university for doing that.”

Kris and Kelsie have been open and honest about their experience with ALS via social media, and Kelsie has shared their story and those of others via Blog and Podcast “Sorry, I’m Sad”. They raised awareness and money Via efforts like #weaksidestrongwhich challenges people to do something they love but with the opposite hand or foot.

“This is a disease that happens in the dark, isn’t it?” Kelsey said. “It’s an overwhelming disease to live with most of the time people can’t defend and can’t be face to as they go through it. You go home, and you just try to beat it every day, and you swallow it every day.”

“And so, for us, to have a chance of him being as healthy as he has been throughout his life really allows us to put a public face on him. And that’s the point, isn’t it? It’s not, like, ‘Oh, we’re an inspiration.'” This is not what we are here for.

“We’re just here to say, ‘Hey, look at us. There are a lot of other people out there like us, and we want you to see this disease and understand that it happens to young families. It doesn’t just happen to grandparents. It just happens. It happens to young parents. ”

Chris received his diagnosis in June 2019, shortly after losing his father, two uncles and a cousin to ALS. At 37, he was told to do whatever brings him happiness. But what brings him joy is life, and so he takes an experimental treatment to slow the disease. The 40-year-old continued to work at Flames, and his family enjoyed every moment together, big or small.

Take on Game 7 of the first round of the Western Conference between the Flames and the Dallas Stars at Scotiabank Saddledome. Calgary won 3-2 in overtime.

“It was a very emotional experience, just because you don’t know, right?” Kelsey said. “You never know how to get in, like, ‘Well, will this be my last chance?'” “And so these things are always big. It’s much more front of our mind than it is for other people, the idea that we need to hold on to that moment and remember it.”

It snowed in Tampa on Monday and I headed straight to see the Tampa Bay Rays at Tropicana Field. Rays GM Peter Bendix asked for Cohen’s favorite player, then told Snows to go to the bunker after the match to get a surprise. Outfielder player Brett Phillips met them with gifts – a signed Phillips shirt for Cohen, as well as autographed hats and baseballs for each kid.

The kids wore them to practice for the NHL Awards Tuesday morning, then dressed up for the show on Tuesday evening.

Cohen said he wanted to meet with the Toronto Maple Leafs Center Auston Matthews, who #weaksidestrong challenged himself on Twitter, hitting tennis balls with his left hand. Matthews sounded emotional during a standing ovation for the Snows before winning the Hart Trophy, voted Most Valuable Player by the Professional Hockey Writers Association, and voted Ted Lindsay Most Valuable Player by the NHL Players Association.

Tweet from @AM34: Here’s my take on the #WeakSideStrong Challenge. Similar to young Rafa’s challenge, I’m @ClaytonKeller37! You… you’re awake 👊 pic.twitter.com/amxmui5k50

Snows will attend Game 4 of the Stanley Cup Final between Avalanche and Lightning at the Amalie Arena on Wednesday (8 p.m. ET; ABC, ESPN+, CBC, SN, TVAS) before returning to Calgary, where Chris will continue his off-season work in the flames .

“He walked off the field yesterday,” Cohen said, “I will remember this forever.” I said, “I wonder how many times he will say that again this week.”

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